China Kidney Disease Network (CK‑NET)

https://www.chinakidney.net/index.php/welcome.html

China National Rare Disease Registry System

https://www.nrdrs.org.cn/xhrareweb/homeIndex

Chinese Children Genetic Kidney Disease Database (CCGKDD)

https://www.ccgkdd.cn

Deciphering Diversities: Renal Asian Genetics Network (DRAGoN)

https://www.scri.edu.sg/dragon/about-dragon

Indian Multicentre Pediatric & Adolescent Chronic Kidney Disease Registry (IMPACT Registry)

https://www.impact-ckd.org

Indian Society of Pediatric Nephrology HUS Registry (ISPN)

https://www.ispn.org.in/HUS_registry.php

KoreaN cohort study for Outcome in patients With Pediatric Chronic Kidney Disease (KNOW-Ped CKD)

https://www.know-ckd.org/ckd/main/main.html

Malaysian National Renal Registry

https://msn.org.my/nrr

National Registry of Diseases Office (NRDO) – Kidney Failure

https://www.nrdo.gov.sg/diseases-notification/chronic-kidney-failure-notification

Taiwan Renal Data System (TWRDS)

https://www.tsn.org.tw/en/twrds.html

Thailand Renal Replacement Therapy Registry

https://www.trtregistry.org

The Japan Chronic Kidney Disease (CKD) Database (J-CKD-DB)

https://j-ckd-db.jp

The Japan Renal Biopsy Registry (J-RBR)

https://jsn.or.jp/member/registry

The Japan Kidney Disease Registry (J-KDR)

https://jsn.or.jp/member/registry

The Japanese ALPort Syndrome (JP-ALPS) registry

https://jspn01.umin.jp

The Korean Society of Nephrology (KSN) end-stage renal disease (ESRD) patient registry

https://ksn.or.kr/bbs/?code=report_eng

Korean Renal Data System (KORDS) Registration

https://ksn.or.kr/bbs/?code=report_eng

The National Kidney Foundation (NKF) Singapore

https://nkfs.org

A Global Online Platform on the Management of Children with ADPK (ADPedKD)

https://www.adpedkd.org

aHUS Registry

https://ahusregistry.com

Alport Syndrome Foundation

https://alportsyndrome.org/aboutourpatientregistry

Cardiovascular Comorbidity in Children with CKD Study (4C Study)

http://4c-study.org

Chronic Kidney Disease in Children Study (CKiD)

https://statepi.jhsph.edu/ckid

Cooperative European Paediatric Renal Transplant Initiative (CERTAIN) Registry

https://certain-registry.eu

Cure Glomerulonephropathy Network (CureGN)

https://www.curegn.org

ESPN/ERA Registry

https://espn-reg.org

European Reference Network for Rare Kidney Diseases (ERKNet)

https://www.erknet.org

Filière ORKiD

https://www.filiereorkid.com

International Pediatric Dialysis Network (IPDN)

https://pedpd.org/index.php?id=14

International Registry Study on Autosomal Recessive Polycystic Kidney Disease (ARegPKD)

https://www.aregpkd.org/about

IPNA Global Kidney Replacement Therapy (KRT) Registry

https://ipna-registry.org

NephCure

https://nephcure.org

Nephrotic Syndrome Study Network (NEPTUNE)

https://www.neptune-study.org

Network for Early Onset Cystic Kidney Diseases (NEOCYST)

https://www.neocyst.de/en

North American Pediatric Renal Trials and Collaborative Studies (NAPRTCS)

https://naprtcs.org

Orphanet

https://www.orpha.net

PodoNet

http://podonet.org

Polycystic Kidney Disease International (PKD International)

https://pkdinternational.org

Rare Diseases Clinical Research Network (RDCRN)

https://www.rarediseasesnetwork.org

Rare Kidney Stone Consortium

https://rarekidneystones.org

The National Registry of Rare Kidney Diseases (RaDaR)

https://www.ukkidney.org/rare-renal

United States Renal Data System (USRDS)

https://www.niddk.nih.gov/about-niddk/strategic-plans-reports/usrds